AWESOME, AWESOME.....TOTALLY! RAH!
Hey! There are two posts today so if you're reading this one, also make sure to check out Daniel and his pumpkin carving skills!
I read about this little boy named Samuel the other day. And it hit me hard. I immediately wrote to his father Dan, and asked if I could do a link to Samuel's site. Samuel has Cerebral Palsy and is older than Daniel. But when I watched the videos and checked out pictures and read, it felt like I was reading all about Daniel. For whatever reasons, I felt a sort of bond. I want to get any information I can from these parents ( I know that there are different circumstances between the kids) but they seem to be doing everything that I want for Daniel.
There was one little clip where his mom was explaining when they noticed that there was an issue with Samuel. All the things that go through your head, "how will he be able to run and play, how will he hold a pencil in school, how will he fit in." Those are some of the things that go through my head on a daily basis. And I try with every ounce of my being to make sure that Daniel has everything and anything that might make his life a little easier. Some people may think I go overboard, or that I am to the extreme. But if it were your child, I guarantee, you would be doing the same thing. There is always the fear that I will let Daniel down. That I will skip a therapy session because I was tired or there was some other "emergency" and that could have been the therapy session that something clicked for Daniel and he understood what to do.
Any how, Samuel's father has made a documentary called "Including Samuel". Watch it. It is heart wrenching in many aspects. He did a wonderful job. I can only hope that Daniel does as well as Samuel obviously is doing.
What I hope you get from visiting his site...., just because our children are different in ways that they had no choice in, they are people, just like you and me.
I hope that people will see Daniel for who he is, not what he has. I don't want him to be known for the little boy that can't talk, or the little boy who moves funny. He is Daniel, and he is my little boy, and I could never be more proud of him that I am. He is truly my hero.
Here are some additional photos of Samuel (because he's so cute!)
Posted by Melanie at 10:03 PM
After all the mishaps and interruptions I finally finished my masterpiece.
by Daniel Spranger
Posted by Melanie at 8:32 PM
Posted by Melanie at 11:07 PM
Today Daniel went to Early Intervention (from now on known as EI).
As I have stated before in previous posts, I am very excited for this year. I think with the group involved and the plans we (Daniel's family) have for him this year, it should be an event filled year.
The consultant from Oakland Schools came to "watch" Daniel and see how he was doing speech wise compared to last year. She said she was impressed that we were right on target and Daniel (for those of you who are new, he is non-verbal) is doing wonderfully with his eye gazing to let us know what he wants. He is making choices, he is using his arms to touch the objects/pictures/buttons & switches. He knows the steps for eye gazing, and he is beginning to really make a lot of decisions in what he wants. Its not me just giving him a toy anymore, its him TELLING me with his eyes which toy he wants. What color marker he wants to use, or what book he wants to read.
His speech therapist (Mrs. A), came to Daniel's hospital based speech/augmentative therapy this past week. Which by the way I think is WAY COOL. She actually took time off her normal schedule and drove 45 minutes to Daniel's therapy session to sit in on it and see how Ms. Pat worked with Daniel and the things they were doing. She saw Daniel in his element. He just absolutely excels when he is with Ms. Pat. She gets him doing things that I never thought we'd be able to do. Or as a matter of fact, she does things with him that I would have never thought to do. I always leave there with so many ideas and different ways to work with Daniel. I think I love Ms. Pat more that Daniel! :)
Anyways back on subject (I tend to ramble!) at EI, the consultant from Oakland Schools said that Daniel was doing really well and she'd be back in a couple of weeks with some voice boxes, to get Daniel use to when he pushes a button it will speak what he wants. (ex: I want to play with the bubbles, or I want to eat.) She is also going to bring out a DynaVox for me to see. Now mind you Daniel is not ready for a DynoVox YET.......notice that I said YET!!! Because I have faith that he will be some day in the very near future.
It was exciting today because Drew (Daniel's friend from EI) was back in school today. Drew has been sick and in and out of the hospital for the past month or so, so it was very nice to see him there. We also found out today that another little girl with CP will be starting to attend EI, that is about the same age as Daniel and Drew. From my understand this little girl has more mobility than Daniel, so I am hoping that Daniel will see that she can either roll and/or crawl to something she wants. I believe that Daniel, once he sees this on a regular basis and because his truck is getting stronger he should hopefully be able to do it in the next year. maybe it will be sooner........he continually amazes me, so who knows.
This weekend we are going to go treat or treating in downtown. All the stores set up and have little toys or treats for the kids in costume. We did it last year but Daniel wasn't really old enough to understand it. I think this year he'll have a blast. I will upload some pictures of our "treat or treating" this weekend!
Thanks for coming to visit, and remember, if you can........say a little prayer for Grandma T.
She is very sick and needs all the prayers she can get. Take care and I hope everyone has a wonderfully exciting weekend!
Posted by Melanie at 10:13 PM
Here is Daniel on the treadmill for the first time. Please do not take note of his posture as we know it is horrible right now. What we were looking for is to make sure he understood what to do with his feet and legs. We added music because all you would have heard is Daniel screaming and giggling!! His screams are quite high pitched and we didn't want to damage anyones hearing! He did pretty darn good for his first time.
Posted by Melanie at 11:10 PM
Gosh, I thought life was hectic about 3 months ago, but sheesh....when it hits the fan it really hits hard!
Posted by Melanie at 10:38 PM
Posted by Melanie at 12:11 PM
Even though Alexandra just had her baby and is still in the hospital, the rest of the family went on the annual family pumpkin patch trip. All went well, Daniel even got to ride the pony this year. Even though it was a bit chilly, it was a good time. Here are some photos to show the fun.
Here is Daniel showing us his pumpkin!
Posted by Melanie at 7:53 PM
Posted by Melanie at 8:04 PM
OOPS I forgot an October birthday but I have an excuse!
She is new to the family! Happy belated Birthday Kendra!
Posted by Melanie at 9:02 PM
Posted by Melanie at 3:28 PM
Posted by Melanie at 5:15 PM