So Daniel is recovering wonderfully from his surgeries.
We only had to give him some pain medicine twice, which is good because we hate giving him any more meds that necessary. And I am happy to report that there was no seizures from the surgery. no seizures period!
Daniel is doing really well with his power wheelchair and his drivers training is good. When you put him in the chair he immediately puts his hand up on the joystick because he knows that is how he gets "speed". We are still working on the directions...left, right, backwards......he knows forward very well and he understands stopping. From what I understanding learning to stop and getting the joystick right to the center is some was difficult. We are playing computer games at therapy with a joy stick to get him use to a joystick and also to learn that if you move it to the left you're going to go left. Daniel being as social as he is, does have some difficulty with watching the road. He is a typical boy, when a girl walks by he forgets what he is doing, and watches her.....which leads to running into the wall or turning his arm and makign the chair follow the girl. Thats a daddy's boy for ya eh?!?
Next week during his Augmentative Therapy (Speech) we will have someone comign with a piece of equipment for Daniel to test out. Because Daniel's eye gaze is so great, someone is coming out with a device that will have a laser that will read Daniel's eye gaze and select the options on the computer that he wants. I am excited by this and just fasinated that they can do this type of thing, but then scared that this might be his option. That he can't get his hands to work well enough for the fine motor of selecting the icons on the DynaVox. Anyways.....I am always willing to test out things to see what is going to be the best for Daniel. I might not like them......but if it will make Daniel's journey through communication better and easier, I'm all for it. I just don't want to give up on him using his hands also, nor will I give up on the fact that I will continue to get Daniel to say "his words" and not rely completely on an augmentative device. Like I said he is awesome with the eye gaze and his facial expressions. The kid can raise his eyebrows for "yes" like no other child I have ever met! Those eyebrows are very expressive and sometimes have a mind of their own! I love it when he is interested in something and up goes the eyebrows! SO next week I will update you on how that eye gaze equipment works. Then at the end of February we are going to have the Tango to try out. I am excited about this also as it is smaller and lighter weight than the DynaVox but I don't think its been around as much. There is another one that his therapist learned about that says looks pretty cool, called a Tellus. The graphics are suppose to be brighter and quicker on this one. So if anyone knows anything about this device please leave a comment or send me an email I'd love to hear about the Tellus or the Tango.
Lets see, where to begin..........Caitlin is doing really well at her home, still getting her house to exactly the way she wants. Alex is doing awesome with her baby Zachary (or as I call him Stumpy!) will almost be 4 months old. Brittany is doing good at college and has some really good job opportunities lined up for the summer. Those kinds that you always wish you could get.....like at amusement parks and stuff. So she just h as to decide what she wants to do. Victoria, as usual....our brainiac child. Loves school and is doing so well as a freshman in many AP (advance placement classes) and still getting a wonderful grade point average. And then there is the little one (who isnt' so little anymore) Daniel......and well you know how he is doing.
Lonnie is doing well also.......he has been dieting and has lost almost 20 lbs. YEA for Lonnie. His birthday is also coming up this next week......the big 38!
As you might remember from a couple months ago, Lonnie reminded everyone of the all important...BACK UP YOUR COMPUTER. We just now got our hard drive back from being repaired. Now mind you normally when someone tells me its going to be 100's and 100's of the precious greenbacks to save data I would have told them to fly a kite..............but this time we had no choice....that hard drive had 1000's of pictures of family and also documented all of Daniel's life up until it crashed....so how could we say no? Just sucks the amount of money that we had to pay, but we have pictures.
Well, I think I am coming to grips with the fact that Daniel will be attending preschool next year. Now, it might not be full-time. (LOL I'm typing this and Lonnie stands over my shoulder says "He's not going to school" and walks away!) We think Daniel is very capable of going to school, and being as social as he is I think he'd love it........its Lonnie and I that are having the problems with him being away from us. So, here is some of the criteria that I have for Daniel going to school,. It will NOT be full time. I will be able to volunteer at the school/classroom. I will be able to visit at any time. I also would like Daniel to be able to use his wheelchair and his Nimbo Walker fairly well. I would also like him to have use of his AAC Device. I would love for him to be potty trained too. We have kind of gotten off schedule on that.
Let me start off my letting you know that I have a sensory issue......I don't like the feel of flour.....it makes me cringe, I can't seem to get the feeling off my hands once I have flour on it. That being said...........this is what my whole house feels liek right now and I can't stand it. From the reconstruction of the house and the floor getting put in.......OH MY GOD!!!
Then, I also have the issue of having an "I hate clutter phobia" I can't stand things being out of place, or sitting where it doesn't belong. I don't like knick knacks, I don't like piles, I don't like things not to be in their rightful places.............I can't begin to tell you that we have three large rooms that were full of stuff shoveled into a smaller room(s) and stuff that should be in a living room in now in a bedroom........OH MY GOD!!!!