So we had our first visit with the ENT earlier this week, needless to say, I didn't leave with a "happy happy joy joy" feeling.
Basically I feel we are getting the run around. Lets go back a couple months ago.
We went to the pediatrician because Daniel kept getting styes in his eye.
Obviously he didn't complain much about it, but they were driving me nuts. It would be there, the next day gone, the next day its back but BIGGER. Then he started to get one on his eyelid, a huge looking bump UNDER the eyelid. I wanted some medicine to get rid of them. She simply said put a warm compress on his eye and it would work itself out, but perhaps we needed to see the eye doctor because maybe he needed his tear ducts probed.
So step two, we get a new eye doctor, as our original eye doctor is older and I didn't feel comfortable with shaky hands probing anything on Daniel. (Read more about that here) So we get a new eye doctor, the eye appointment went fine (besides a few screams), his vision is OK and not affected by the Vigabatrin. When we asked about the styes (they were big at the time), he said well before I would go in and get the probing of the tear ducts, and the removal of the sty (cyst), I would like an ENT to see him to make sure that its not his sinus that is blocking anything and up into the eyes. Cause he felt that if that were the case that once that was cleared up the eyes would clear up. FOR THE LOVE OF GOD.........WILL SOMEONE PLEASE JUST HELP ME FIGURE OUT WHAT IS WRONG WITH MY CHILD'S EYES AND WHY IS HE GETTING THESE FLIPPIN' STYES SO MUCH.
So, next step we find a pediatric ENT. She was very nice and after our 3 hour appointment and getting x-rays and asking a bunch of questions, Daniel's adenoids are large and need to get removed. This is causing all the boogerectomies that we have written about. From the picture of the x-ray, she said that Daniel's airway and drainage isn't really happening because there is a very very very small (Did I tell you it was small) passage. And with all the boogers he is getting, it is apparent that there can be no drainage like the average person. Apparently he also has fluid behind his one ear (although he has never cried or complained of an ear hurting. In fact he has never had an ear infection his whole life!) The doctor said that with the fluid behind his ear it would give him the feeling of descending in a plane and 20-30% of hearing loss in that ear. WHAT??? This kid turns when you drop a needle on a cotton ball! OK, so anyways back onto the subject....
Daniel will be having surgery in January 2008. Welcomes in the new year nicely don't' you think?! BUT she doesn't' think that the styes are associated with the adenoids.......and that when she has Daniel knocked out for the sinus surgery, that perhaps the eye doctor would like to come in at the same time and do the tear duct probing and sty/cyst removal. Well wouldn't that work out nicely? Get it all done at once?? Well that would be too damn easy wouldn't it?
Seems the ENT only does surgery on Thursdays and the Eye doctor that we went to is out of a different hospital so he can't do the eye surgery and the second eye doctor that was recommended to us that works out of the same hospital as the ENT, oh, well we're sorry but he doesn't do surgery on Thursdays, he only does them on the 5th Wednesday of the month in the year 2012, and maybe there is another ENT that could do it on that day? What do you think!?!?! So forget it. Daniel is getting his adenoids removed, and hopefully we will see if that will clear up the styes, and if not, then we will have to go the the eye doctor and say well you're thoughts weren't correct so, lets knock my child out again and do the eye surgery.
%Y$&%H$*&# I just want to scream sometimes.
Why can nothing be easy?