Saturday, January 31, 2009

Remembering Januarys

Wow, can you believe January is already over?
Talk about time flyin'.

I decided to look back in the January's of the years past since Daniel.

January 2009 : Unfortunately we got bad news this month that Daniel is having seizures again. Infantile Spasms. Not what we wanted to hear.

January 2008: Looked back and almost 1 year to the date of our EEG in 2009 was the one in 2008.
Oddly enough I still have this happening to me too! And yes this still happens to Daniel.

January 2007: This year we were frantically planning the two fundraisers we were having for Daniel. Busy times. We had some really great support. We even made it to the big time and Rob over at Schuyler's Monster gave us a little shout. We even made it to Mr. "Fancy Pants" side bar with a link to our site. All before he became the Mr. Fancy Pants that he is now! :)
We are still grateful for all the hits he generated for us.

January 2006: Daniel was diagnosed with Infantile Spasms and we were fighting to get them under control. We switches neurologists and started going to the best of the best for Infantile Spasms. Daniel was also diagnosed with his brain malformation called CBPS (Congenital Bilateral Perisylvian Syndrome) also known as BPP (Bilateral Perisylvian Polymicrogyria).

January 2005: Daniel was still being made! Sometime during the first trimester is when Daniel's brain didn't develop properly.


Here is a photo of a little boy and his new crown. Meet Jack. Isn't he a cutie?!?

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