Friday, December 5, 2008

A New Find....

While Daniel is off at school for 3 hours a day, I try to fill up my time so that I keep busy and don't think about what he is doing at school. I still have a hard time with him being there, and me being home.

There is and always will be that insecurity there of "is he being taken care of" the way I would? Like I have said before I absolutely LOVE his teacher, and so does Daniel. Well Daniel went back to school today after being out since before Thanksgiving. I felt some comfort because Ms. M (his teacher) had some things for me to do today for the classroom. Well we went in and there is a sub today!! Ms. M. is out sick! UUUGH, so I am obviously not staying there to work because no one knows what I should be doing! I so wanted Daniel to go back to school when Ms. M was there because I didn't want him to be scared. And had I known she was out today I wouldn't have taken him to school! I know that is horrible, but I have some sense of security when she is there. Hopefully she feels better soon.

I do know that today when he is there he will be with both the OT and the PT, and they both seem to really like Daniel too! I know I work myself into a tizzie over nothing I am sure. But you always hear those horror stories that happen to special needs kids. And besides Daniel being a special needs kiddo, he is also non-verbal which sucks twice as much because he can't tell me if anything is going on. YET- when he gets his augmentative device and learns how to use it, he'll be able to tell me many many things and I'll know what is going on in the cute little head of his!

Anyways...back to keeping busy while he is gone. There are blogs that I check, there are medical searches, medical equipment & therapies that I look into all the time. Well today I was looking at Signing Times. If you don't know who or what "Signing Times" is then follow the link. We got hooked on these when Daniel was about 18 months old. He loves them and so do I.

Unfortunately we don't have the whole set but the ones we do have are awesome. We have
Baby Signing Times Vol. 1 and most of the first collection that we have picked up at mom to mom sales and such. We're hoping to get the next collection soon. They keep his attention and he completely understands when I do the sign what I'm saying. Daniel can't do the signs yet because of the CP in his arms/hands but I don't care. He is understanding and learning regardless. For anyone looking to buy a really cool holiday gift for kids...these would be it.
Sounds like I'm doing a commercial for them! LOL really they are very cool.

Alright I got off the subject again (kind of!), while I was there I came across a song that was written by Rachel Coleman who created the videos. She writes all the songs for the videos, but this song is kind of for grown ups, and the words really struck home. Its called "Shine" check them out! (Scroll half way down the page in the "shine" link and you can hear the song). If you'd like to see some of the other songs and lyrics follow the link. (Songs)

Sometimes I see you stuck
For such a long time
A daily nothing new
Pretend I don’t mind
With lists of things you’ll never do
Until somehow you do
And you do — you do — you shine
The days and months and years,
they run together
Is it just one day? Or is this forever?
You’ve taught me in your lifetime
More than I’d learned in mine
And you do, you do, you shine
Shine Shine Shine Shine Shine
Shine your light on me
Shine Shine Shine Shine Shine
everyone will see
Shine Shine Shine Shine Shine
I’m so glad you are mine
And you’ll shine in your own time
Well, maybe I’m too close to see you clearly
Or is it now my role to simply believe?
You’re just one of those mysteries
That may never be solved in time
But you do — you do — you shine
And Sammy will do what Sammy will do when Sammy is ready to do it
And Trevor will do what Trevor will do when Trevor is ready to do it
And Lucy will do what Lucy will do when Lucy is ready to do it
And they’ll do it in their own time
Yeah, they’ll Shine Shine Shine Shine Shine
Shine your light on me
Shine Shine Shine Shine Shine
And everyone will see
Shine Shine Shine Shine Shine
I’m so glad you are mine
And you’ll shine, and you shine

Hopefully I don't get in trouble for putting them on here! If you're from Signing Times, just send me an email and I'll remove! :)

How cool is that?


Justinich Family said...

We have the first series of Signing time and I totally want to start collecting the 2nd series as they seem to be more conversational instead of just one word signs. (which are great too) I heard that song Shine at the end of video 6 and it made me cry, I love it. When I first saw the video I was so impressed that there were special needs kids in the video and then come to find out Rachel has a 2nd daughter who has cerebral palsy and spina bifida.
Totally get you on the whole thing about school and the child being non verbal and not able to let you know if anything bad is happening. Whenever I ask Evan if he had a good day at school he says "ya" and shakes his whole body up and down.

Ellen said...

Love that poem (and I won't report you to Rachel, ha, ha, ha!). I also worry about how they're taking care of Max in school. Next week, I'm taking a day off of work so I can go into his class and observe. Also, I ask them to send me notes home about what they're doing with him (his teacher, his therapists) OR to email me weekly. It's partly to make sure I can reinforce stuff at home, and partly to make sure they know I'm involved!!!!

Bird said...


I asked my mom to get us some signing time videos for Christmas since so many moms on the net seem to like them.