Monday, January 7, 2008


We have had a website for Daniel since the beginning of our "Journey" with Infantile Spasms, through BPP, and onto Spastic Quad Cerebral Palsy. It has either been with Baby Jellybeans, or through Blogger.....but it has been 2 years almost.

2 YEARS of ups and downs
2 YEARS of some really scary things that we learned on the internet
2 YEARS of some really supportive "web friends"
2 YEARS of gathering information and doing hours and hours of research
2 YEARS of intensive therapy on an almost daily basis
2 YEARS of a lot of tears, and
2 Wonderful years of seeing my son thrive beyond what others imagined.

Some people look at us and say "wow, its got to be so difficult".
Yes on some days it is.....but other days its no different than what any other parent does.
So we have to carry Daniel because he can't walk
So we have to feed Daniel because he can't feed himself
But I can almost guarantee you, that if you were able to experience Daniel for just one day, you wouldn't want to give him back either!

I am amazed at how great he is doing, and we have a lot of people to thank for him doing so well.
Therapy.........sheesh, I can't even begin to express how much these people have helped us. Countless hours, therapists that leave their jobs and go home and actually think about things to do with him to help him. They actual go home and research what piece of equipment would be better for him. They have all been godsends to us.

Then, you wouldn't believe where people come from to read Daniel's blog and offer comments and support through the blog and by direct email. Here is just a brief little list of where some of our visitors that keep returning come from:

Saint John, New Brunswick, Canada
Guelp, Ontario
Austin, Texas
Kelty, Fife, United Kingdom
Haderslev, Sonderjylland, Denmark
Munich, Bayern, Germany
London, United Kingdom
Gold Coast, Queensland, Australia
Sydney, New South Wales, Australia
Bangalore, Karanataka, India
Ljubljana, Bohinj, Slovenia
Mangaroa, New Zealand
and of course, if you take a little glance at our map at the lower bottom of the page, you'll see we get people from all over the United States.
The support has been awesome......and I just wanted to let you know we appreciate it all.....



1 comment:

Jacolyn said...

Daniel is a very lucky little boy...he is so loved.