Daniel LOVES people, he likes to gibber jabber with them. I love it because he is learning to say "hi" to people at the appropriate times. It is difficult for him for a few reasons; the processing time of the brain, he needs to remember how to form his mouth, and then the amount of air that is needed to push out the word "hi". It is a lot for a child with CP let alone paralysis of his mouth/jaw and throat. So when it does come out its a little bit louder than a whisper. If he's really excited it sometimes gets louder but then the tone in his jaw kicks in and it doesn't come out sounding like "hi". But he tries really hard.
That being said, when we are sitting in the waiting room for our turn at the appointment and you see a cute little guy staring at you with a grin ear to ear...it just might be Daniel and he is waiting for you to acknowledge that you see him and that you heard his whisper of a greeting.
Do me a favor, smile at him and say hello!
Otherwise he is going to try to jump off my lap and want to walk over to you which will consist of me in a crouched over position helping him move his cast deadened legs until he gets to you. At which point you will finally look over at him and he will again whisper "hi" and I will fall over dead with a broken back! Then where does that leave us???
Thank you, and good day! :)
7 comments:
Daniel sounds so sweet and just amazing! What these kiddos go through just blows my mind and breaks my heart and then warms it all up with how awesome they are.
Hugs and prayers,
Jody
Awwwww, so sweet! Isn't it funny how these kiddos have this radiant personalities? It is always surprising to me, even after six years. We were in Subway the other night for dinner and this lady walked in and Faith just shouted "HEY" with this big loud voice! It totally shocked the lady but she shouted HI right back and boy did that get Faith going!
Who could resist that sweet face? I bet he is quite the charmer in person!
I love it! Q delivered a perfectly formed and enunciated (and loud!) "Hi!" last night. We all about fell over. We get a few words a year, maybe two or three every few months, and it just melts us all. :o)
Thank you for sharing this.
What a sweetie! :)
Not sure where it leaves you guys...but it would leave me in stitches! Hysterically sweet!
Hope Daniel hears my HI all that way from under ten feet of snow RI!
xoxo
...danielle
There is a new CP website www.CerebralPalsySocial.org and I suspect you will probably want to know about it. It’s for people who cope with cerebral palsy directly or indirectly, on a daily basis.
So what can I say about it. It pays to have a look because you’ll see we’ve taken our first steps and now want to increase membership to make it more useful for all who use it.
You are invited to open a blog, use the bookmark function, start polling, open a group or join an existing group, connect your Twitter or FriendFeed to your profile, and the options are growing all the time. Most of all, you can stay in touch with your friends and make new ones!
So, stay well and stay in touch.
The CerebralPalsySocial.org team
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