Friday, June 19, 2009

Busy Week

Well this is the first official week off school.

Aren’t you suppose to sleep in and relax?

Well apparently NOT at my house.

 

We had our check up with Dr. Chugani (some call him the Rock Star of Neurology).

We had our dentist appointment with Dr. Tracht

I (mom) had an MRI on my knee. (WOW that machine is loud).

Today we go pick up Daniel’s new DAFOs.

 

Recap of appointments-

Neurologist – Doing well. I love going to him most of the time, we always leave feeling like there is realistic hope.  He says things and you can tell he means it.  If any of that makes sense?!?!

 

Daniel’s weight is 41 lbs. so that is pretty good.  First thing Dr. C said when he came in the room.  WOW he’s getting big!  We made a change in one of his medicines.  We are scheduling a MRI with DTI.  I am nervous about this but also excited.  I don’t know all the technical terms but what this will show is if the area that is needed for speech has developed correctly or at all.  If it hasn't at all, then Daniel speaking is very very slim. If it has developed there is a better chance that speech is possible for Daniel.  Not 100% or anything but he said we would then get working on speech development very aggressively.  I’ll post more on this later.

But all in all, he is doing well.  Everything we had concerns about, Dr. Chugani simply said….He’s only 4 yrs old…give him time.

 

Dentist – God I hate these appointments.  I always make Lonnie come with me.  Then he goes with Daniel into the room.  I can’t do it.  I did it once and I had nightmares afterwards.  I get shivers thinking about it. Daniel gets drugs but they don’t seem to help much.

 

AFO – Cross your fingers and hope they fit right!

3 comments:

wherever HE leads we'll go said...

I hear that sleep is highly overrated anyway!

Glad things went well with the neurologist. Hopefully the new tests will give you some good answers so you can plan your "attack" better.

baby trevor's mommy said...

Seriously...I hate leaving the neuro's office with more questions than answers! I'm liking Dr.C more & more! I like realistic hope...and answers. That is definately how a Rockstar would roll! *smile*

Oh...and speaking of the dentist. Know that fall Bristel had? Checked her teeth today...and what did I find but a big ugly absess! Ugh...

Am I the only one out there that thinks there should be some Cosmic rule that only one child is allowed to have medical drama at a time?!

...danielle

Keri said...

Please, remind me again... what is sleep and relaxing? Somehow those terms have erased themselves from my personal dictionary. I believe they've been permanently replaced with busy. It's always something...

Man, I like the sounds of Daniel's neuro. Sounds like he could make a two almost three hour drive worth a visit.

As for dentist... YIKES! After our last visit I will NEVER ever in my life put Logan through that torment again. It was beyond agonizing, I can't even go there to explain it right now. Next time, I have to have him put under anesthesia and not looking forward to it. Therefore he's about six months passed due for his routine cleaning and x-rays. Errrrggg!!!

How did those AFO's turn out? A-okay?