Well currently I am sitting across from Daniel who is laying in the hospital bed getting his VMR. (24hr. Video EEG). NOT FUN.
If you want a good laugh (to a not funny situation) find our other posts of our experiences with EEG's. Its a good chuckle to see if Lonnie, or if I will survive without killing each other. See adults can't sleep during this time. One of us has to stay awake to make sure if Daniel makes any weird movements that we hit the button to mark the video recording.
We're not sure if Daniel is having seizures or not, but this is the time that I am going to mash that button at any strange thing that I've seen him do. Anything that might even be questionable. This way I will know for sure in the end.
He is happy now as it lays in the bed with his orange pillow, his sock monkey pj's and his Elmo blanket watching Go Diego Go. This was NOT the case when we got hooked up to all the wires today. The whole time he was getting hooked up (which took FOREVER!) Lonnie kept mouthing to me as I was holding Daniel on my lap, "WE ARE NEVER DOING THIS AGAIN!"
It is traumatic for Daniel (and us). It sucks to see him scared and screaming, with tears running down his cheeks cause he is not understanding why this person is doing this to him.
I think unless Daniel actually has a big seizure, or a notable one at least that this will be the last EEG we get for a LONG time.