OK, so if you've been following you know that were are scheduled to start ACTH this week, but because Daniel has a cold it is postponed until next week.
And this is the GREAT news (NOT!) we just found out. Here is an excerpt from an email from the ONLY company that makes ACTH. It is very difficult to get insurance to cover ACTH in the first place.......and I can see why they are hesitant now. Please take note of the bold red print. Can you frickin believe this? Prior to the 27th of August, would you like to take a guess at the cost per vial? $935.00. Just a tad bit of an increase eh?! SICKENING.
After in-depth review of several potential strategies, Questcor's Board and remaining executives decided that the best way to make Acthar economically viable for the long term, so that patients have a continued uninterrupted supply of Acthar, is to adopt an orphan-style pricing model for Acthar, reflecting the ultra-rare nature of the disease for which it is actually used by doctors. It is important to put this new pricing into perspective. Pricing for orphan-type drugs typically ranges from $50,000 to $500,000 or more per year. Effective August 27, 2007, Acthar is priced at $23,269 per vial. When used for treating IS, this results in an average total treatment cost of around $100,000. In a majority of cases, IS patients are on a single course of therapy and then they are done with Acthar treatment entirely.
-Executive Vice President, Corporate Development Questcor Pharmaceuticals, Inc
Anyone have an extra large refrigerator box and perhaps a dishwasher box? I figure with enough duct tape We could make a nice two story cardboard box house for us to live in! I've found a site that gives us step by step instructions on how to make one.
We should be starting the building process as soon as I collect enough cardboard! LOL....really shush, its not funny! :P
These are my plans so far!