Daniel, You are my inspiration, i love you so much, you have taught me so much about life and how to appreciate everything that comes our way. You mean so much to me and i would never trade you for the world. Thanks for being so strong, yet so young, you are amazing and nothing less, you're my world and i love you so much. You never realize how much someone means to you, especially considering how you can brighten up my day, just smiling at me as soon as i walk in the door, and suddenley anything that was bothering me is gone. I love you D, you are my main squeeze. Love, Your sister.
Yeah Daniel!!!!! I've been gone for 3 months and look at everything you've done! You're walking and saying elmo's name...I'm so proud of you and I can't wait to see you at Christmas! :) Love, Katie
Hi baby Daniel! I miss you very much! and I cannot wait to be home in just two weeks to hold you! Tell your mom that you want me and auntie ann to baby-sit you at least once during my winter break! I love you with all my heart!
Hi Daniel, just stopping in to see whats going on. I like your new website, lots of new things to check out. I really like your Hallowe'en photos! We love you from here in Canada Dawn, Josh and Dylan
WOW..thats all I can say...WOW....I am so proud of you, your walking and talking!!! You look great...keep up the good work buddy! And yes mashed potatoes are my favorite too!
OMG!!!! Mel- the girls have gotten so old! They are such beautiful girls! Are you beating the boys away at the door? I hardly recognize them in so many of the photos. Brit is tall! And Tori is so old... I think that i will always remember her as a little one. Daniel is also getting so old! Miss you guys. Give the girls kisses for me! xoxo
Hi Daniel, It was great to finally meet you last August. I hope you're feeling great and giving your mom a hard time. If you need anything just call or write. Love the new website. Take care, stay well. Love Uncle Pat
Hi Daniel. It is great to see you doing so well. My name is Nicole and I have a daughter named Kamby, who is 5. Kamby was originally diagnosed with Lissencephaly and has since been changed to Polymicrogyria. I am a member of the ppg group on yahoo and got your mom's email from them about your new website. It's great!
What a beautiful boy you are, god bless you and your family. thanks for sharing your life with all of us, keep up all your hard work little man! From Ontario Canada
Hi Daniel and Family, Daniel looks great! Did he ever have problem holding his head up? My son was diagnosed with Bilateral Perisylvian PMG by Dr. Dobyns. He is going on 16 months and still cannot hold his head up or track with his eyes. Does Daniel have this problem? I am so glad he seems so alert and is able to expressed himself - laughing, crying, etc. We are still trying to control Aiden's seizure but is not having much luck. Good luck with Daniel and keep us updated. Thanks. Shawna, mom to Aiden
Hello Daniel and mom & dad & sisters! Great website you have!! Our son has also bilateral perysilvian polymicrogyria. He is now 7 months old and he is in the hospital. He had a lot of seizures but now they stopped since 3 weeks after ACTH-therapy. We hope to bring him home next week. We are from Belgium. You can visit our website www.familieplanckaert.be but it's in dutch (sorry for this). But if you don't understand it, you can look at the pictures :-) Good luck with Daniel!! Kisses from Belgium family Planckaert
Thank you for sharing your website. My son has recently been diagnosed with PMG. We are currently researching this diagnosis and waiting for a list of appts. with specialists. Your description of the trip to Italy is the best I have seen. I would not trade my Nathan for the world, but this diagnosis has killed many of my dreams. However, I am thankful that Nathan will not know the difference and that he may still dream his own dreams. God bless Daniel and your family.
I am parent from the web-group. I have spent the past year learning about one of the items on his MRI. I am going down the list exploring the items one by one. I am currently trying to learn more about Polymicrogyria. I'm off now to explore you very interesting Web page
Daniel John you are getting so big and growing so fast. I have seen so many changes and growths in you that some thought would never happen. You are a strong and happy boy. I treasure everything about you and know you will make it through all the tough times. Stay strong and smile. I LOVE YOU! Your biggest sister caity-lynn :)
To all of the Sprangers~ I absolutely love the website! Thanks for sharing it with me. I miss you, Daniel. I hope you all get feeling better soon. Hope to see you on Wednesday.
Mary Myers Early Intervention Original Post 12/04/06
I don't know who's more amazing, Daniel or his parents for loving him so much. You are both a model to live by. Your website touched me in so many ways.
Daniel, you are such a beautiful soul. I love your smile and your willingness to grow stronger and stronger everyday. Your mama and daddy are wonderful parents (i can tell from the videos) and I'mm sure you feel warm and happy and safe in their arms. Thank you Danile for letting me be a part of your world. Carmen, Nick and Lily Rose
Hi Daniel, I'm Lamphere's new Director of Human Resources and today I had the opportunity of touring your classroom. Your teachers, Ms. Horvath and Ms. Meyers, told me all about you and your web site. I'll be keeping my eyes on you. I hope to meet you someday soon. Happy Holidays! Rita Lewis
Hi Daniel! You are such a wonderful little boy we enjoy watching grow up. I love your smile! You are a gift from God to all of us. I love you. Uncle Jeff
Merry Christmas Daniel! I hope you enjoy your travel size Elmo and that you get your Medical Alert Braclet soon. Have a Merry Christmas and enjoy your week with mommy, and your sisters!
Just wanted to say that I posted a little something on my blog, so hopefully some people will come by and give you a little boost. Take care, you have all my very best wishes.
Hello Daniel. I have read your page via Rob's website for Schuyler. I wanted to tell your mommy that I once got a DynaVox for a former consumer of mine. It's very very cool and it lights up at night and does all kinds of neat things. I will read your story today, but I just wanted to say hello first. Shannon Best Austin Texas www.porterandabigail.blogspot.com
Came over from Rob's page. Best wishes for continued success in all your efforts. It sounds like that little angel was entrusted to determined parents.
Hi Daniel. I found your site through Rob's page about Schuyler. My daughter Caitlyn is 3, and was diagnosed with Rett Syndrome last year. Congrats to you guys on finding a great seizure med. I know you are dancing with joy! Our prayers will be with you and your family.
Hey Big Guy : ) lookin' pretty great gettin' all "Footloose" - I love it !! Keep up the good work - things have a funny way of working out . God Bless xoxox P.S. I'll spread the word / saw this on Rob'site
Dear newbie?s to Daniels webpage, I am Caitlin, Daniels biggest sister. I just wanted to let all of you know how much my family really does appreciate all your blessings and support. It brings tears to my eyes knowing that there are excepting, caring and loving people out there like you. Thank you for your messages. Sincerely, Caitlin
Wow Daniel you have alot of supporters out there. Today I had two donations given to me. Thank you so much Mrs. Donna Yates and to the Norwakowski family. Yippy!!!
Go Daniel! Congrats on being seizure free for almost a year! My daughter Julia also has infantile spasms and we've acheived seizure control with Vigabatrin too. We don't know what caused her IS, though. I hope Daniel continues to prove the medical community wrong.
Hi- I just read your journal and want to tell you about what we did when our micropreemie (25 weeker) was diagnosed with severe apraxia. We got Carlson's brand fish oil from Whole Foods because it is the best in the world for being chemically free. Every night, she would get a spoonfull of that and then a spoonfull of a flax blend oil. There are a lot on the market. The key is to mix Omega 3s with Omega 6s. Anyway, she did do speech therapy, so who knows what works, but she is now ahead of actual age in speech and no longer apraxic.
my little boy is called Joel, he's 7, and he too has cbps. Sending a hug from Hereford, England, because sometimes they can make a world of difference to a day :-) Thanks to schuyler's daddy for pointing you out!
Daniel~ i missed you today. i hope you are feeling better. i was so looking forward to seeing you. Your wonderful smile makes my day. Let me know how you are. Love, Mary
Hello, this is Lonnie's old neighbor on Stephens. Hi Lonnie, if there is something that I can do to help you guys out please contact me or tell your mom. We are not rich or anything but I can do lots on the computer or make phone calls for you or track down information you need. My sister is a nurse and she has ways of finding organizations or funding maybe that would be of help to you now or in the future. Your son is adorable and I know he is a blessing to you. I have a nephew who is autistic and I know some of the challenges of having a Special Need's member of the family. He is our pride and joy and he is 16 now. I will keep Daniel in my prayers and please feel free to call me if there is anything I can do to help you out. Your Website is great and I spent well over an hour reading it and going through the photo's. Your wifes daughters are beautiful by the way!! Anyways I wanted to say hi and Wish You All a Blessed Day. Love Ya! PAT-T ann
Hang in there! My Granson Micheal was born with many birth defects, actually we didn't think he would make it through his birth! But here he is 2 yrs old and the light of our lives! God Bless your family! Cindy
also have a child with special needs. He is 27months now. (Well almost) He was diagnosed with Spina Bifida, hydrocephalus, weak diaphragm and partial holoproensephaly (a brain abnormality). Despite all of this he has overcame a lot of it and is doing quite well. I hope Daniel continues to overcome his. Best of thoughts to him. Cindy Edgett signed down below she is his Grandma.
Hello Daniel I am Drew's Grammy.You are such a cutie and I'm so glad that you are Drew's friend in PT. I know that you and Drew CAN DO IT! Love Drew's Grammy Tina
Austin has had a Medic Alert bracelet since about 6 mos into our IS/epilepsy journey. He spends the days with his great grandparents. Better safe then sorry I say. Jen mom to Austin from IS group
We love you so much-- So excited for this weekend, its going to be fun! Hey bubba... you're a hottie and i miss you but i will see you soon I hope you enjoyed your Valentine's Day..I'll make sure to give you a kiss! xoxxo MUAWH Later Bro!
hey lil bro... im so excited that we get to spend all this time together now... i love you... and i love your new teeth they look amazing... i love you
Dear Daniel, I learned about your website this weekend and have enjoyed learning about your life and seeing pictures that show how beautiful you are. I used to work with your dad, for about 4 years. What I remember most about working with your dad is that he could always make us smile and laugh (really laugh, the belly busting kind of laugh). It looks like from the pictures that he is able to do that for you and your family. I hope you continu to grow well and strong, and know that I too am praying for you. God Bless ! Jane
I learned about your website today from your Mom's posting on the Yahoo PMG Group. I live in Michigan too with my daughter who also has PMG. I loved checking out your website, what hard work someone who loves you very much has done to make it so very special. You are a very good piano player and your one year video made tears come to my eyes. What a great family you have! You are making amazing progress, keep up the good work! Take care
that little guy from youtube looks just like daniel john. i would totally sponser daniel. i dont understand why you cant try the sessions if they wont hurt him... i would be very persistant about it mom. love ya
Hi Daniel, love the site, you're one great kid, keep up the hard work it'll be worth it in the end. I loved your photos and the poems. I'd love for you and Daire to meet up sometime. XXX
You are the cutest little boy and it sounds as if you couldn't have any better parents. Hope the Easter Bunny is good to you and everyone. Say hi to Mom and Dad and your sisters.
I would kust like to send good wishes and good thoughts to Daniel. His Great Grandmother send her love too. We both think he is very beautiful. Love, Nancy
From Nancy (Spranger) Correa Original Post 04/10/07
Hi Daniel! I hope this finds you happy and growing into a big boy! You are probably wondering how and why we share the same last name...well...I am a first cousin of your grandpa Mouser and your Aunt Nancy I adored your grandpa growing up (he was two years older than me), even when we were children, he was quite the character, always fun, creative and needless to say very mischievous! I worked at Beaumont Hospital for ten years before moving to Arizona, you are in such good hands there. It was very nice to know your physical therapy is being done there and you are doing so well! Take care Daniel, I will keep you in my prayers! Big hugggggggggggggggggggssss! Linda
My 16 month old daughter has had IS since she was 8 months old, she is very special and beautiful and we are very hopeful for a bright future for her, all the best to your family keep up the great work Daniel!!
daniel... u are getting so big... and heavier than i thought... you are such a smart little boy... i hope that you succeed in all of your dreams and goals... keep going buddy... see you when u get home... love always... your big sis alexandra
Daniel doesn't deserve the life that he's gotten. But with a sister as amazing as Tori, his odds look good. I'm sure that he'll prove to be more than anyone ever expected. Love, Zoe.
the love and support pours out of these pages. you are an inspiration to us all. never give up hope and always enjoy life. you have touched my heart forever.
From julie leckenby & Joseph Original Post 05/25/07
hey daniel, i havent seen you for months! youre one of the cutest kids ive ever seen, honestly. i hope everything comes well for you and your family. much love, xoxo
It was nice to see you yesterday, Daniel, at Grandma's surprise party. You certainly are a pleasure to be around. I love you!!! xoxoxoxoxoxox Aunt Mary
Hey Mel- Check out Daniels wheels! You should get him some rims and totally pimp it out! LOL. Good to see you in the video too. You look fantastic. Hugs for the girls. XOXO
What an amazing boy! My twins were born at 27 weeks, so I can relate to you and your family. You can visit our site at www.littlecharlierocks.com. I'm saving your site as one of my favorites so I can keep up with how you are doing... Christy
checking up on you Daniel and it looks like you have been a busy boy. Wow ! I don't know how your mom keeps up with your schedule, I do know (from experience) it is exhausting.
The Pictures were beautiful to say the least. Thank you for sharing them. Even though we've had the dx of PMG for 4 years now your words of wisdom were encouraging. Daniel is so lucky to have you as parents. This was very uplifting emotionally. Take care Blessings,
129 comments:
Daniel, You are my inspiration, i love you so much, you have taught me so much about life and how to appreciate everything that comes our way. You mean so much to me and i would never trade you for the world. Thanks for being so strong, yet so young, you are amazing and nothing less, you're my world and i love you so much. You never realize how much someone means to you, especially considering how you can brighten up my day, just smiling at me as soon as i walk in the door, and suddenley anything that was bothering me is gone. I love you D, you are my main squeeze. Love, Your sister.
Brittany
originally posted 11/20/06
I hope you are feeling better very soon Daniel. xxoo
Aunt Ann
Original post 11/28/06
Love the video of you walking Daniel, you're such a big boy....and Elmo would be so happy to hear you say his name..good job baby.
Aunt Aimee
Original Post 11/30/06
Yeah Daniel!!!!! I've been gone for 3 months and look at everything you've done! You're walking and saying elmo's name...I'm so proud of you and I can't wait to see you at Christmas! :) Love, Katie
Original Post 11/30/06
Hi baby Daniel! I miss you very much! and I cannot wait to be home in just two weeks to hold you! Tell your mom that you want me and auntie ann to baby-sit you at least once during my winter break! I love you with all my heart!
Cousin Blair
Original Post 11/30/06
Hi Daniel....how great to see you walking..what a big boy you are! Keep up the good job! Praying for you and your family...love and prayers, Jackie
Jackie Lancaster
Original Post 12/01/06
Hi Daniel, just stopping in to see whats going on. I like your new website, lots of new things to check out. I really like your Hallowe'en photos! We love you from here in Canada Dawn, Josh and Dylan
Cousin Dawn
Original Post 12/01/06
Your doing great there big boy. Keep up the good work. So if I AM really your favorite Uncle why don't you ever come and visit??? Hmmmmmm??
Uncle Greg
Original Post 12/01/06
WOW..thats all I can say...WOW....I am so proud of you, your walking and talking!!! You look great...keep up the good work buddy! And yes mashed potatoes are my favorite too!
Cousin Stephanie
Original Post 12/01/06
OMG!!!! Mel- the girls have gotten so old! They are such beautiful girls! Are you beating the boys away at the door? I hardly recognize them in so many of the photos. Brit is tall! And Tori is so old... I think that i will always remember her as a little one. Daniel is also getting so old! Miss you guys. Give the girls kisses for me! xoxo
Christine Hart
Original Post 12/01/06
Hi Daniel, It was great to finally meet you last August. I hope you're feeling great and giving your mom a hard time. If you need anything just call or write. Love the new website. Take care, stay well. Love Uncle Pat
Uncle Pat
Original Post 12/01/06
Hi Daniel. It is great to see you doing so well. My name is Nicole and I have a daughter named Kamby, who is 5. Kamby was originally diagnosed with Lissencephaly and has since been changed to Polymicrogyria. I am a member of the ppg group on yahoo and got your mom's email from them about your new website. It's great!
Nicole Schuler
Original Post 12/01/06
Wow, I love the walking. Missed you the past couple weeks. Hope you are feeling better. Valerie
Valerie Gumbleton
Early Intervention
Original Post 12/01/06
What a beautiful boy you are, god bless you and your family. thanks for sharing your life with all of us, keep up all your hard work little man! From Ontario Canada
Lisa from Ontario Canada
Original Post 12/01/06
You have such a beautiful boy, you must be so proud. Congrats on the website, looks great. Mel and Niamh
Melanie Wrintmore in NZ
Original Post 12/01/06
Hi Daniel and Family, Daniel looks great! Did he ever have problem holding his head up? My son was diagnosed with Bilateral Perisylvian PMG by Dr. Dobyns. He is going on 16 months and still cannot hold his head up or track with his eyes. Does Daniel have this problem? I am so glad he seems so alert and is able to expressed himself - laughing, crying, etc. We are still trying to control Aiden's seizure but is not having much luck. Good luck with Daniel and keep us updated. Thanks. Shawna, mom to Aiden
Shawna
Original Post 12/02/06
Hello Daniel and mom & dad & sisters! Great website you have!! Our son has also bilateral perysilvian polymicrogyria. He is now 7 months old and he is in the hospital. He had a lot of seizures but now they stopped since 3 weeks after ACTH-therapy. We hope to bring him home next week. We are from Belgium. You can visit our website www.familieplanckaert.be but it's in dutch (sorry for this). But if you don't understand it, you can look at the pictures :-) Good luck with Daniel!! Kisses from Belgium family Planckaert
Planckaert Family
Original Post 12/02/06
Thank you for sharing your website. My son has recently been diagnosed with PMG. We are currently researching this diagnosis and waiting for a list of appts. with specialists. Your description of the trip to Italy is the best I have seen. I would not trade my Nathan for the world, but this diagnosis has killed many of my dreams. However, I am thankful that Nathan will not know the difference and that he may still dream his own dreams. God bless Daniel and your family.
Annette
Original Post 12/02/06
Hi from Wes, age 2 with schiz and pmg
christa weger
Original Post 12/02/06
hey daniel, hey caitlin, brittany, alex, and victoria. hey melanie and lonny. just wanted to say what's up from portland. i'll see you at christmas
Cousin Justin, Portland OR
Original Post 12/02/06
Wow, Daniel is doing so well, keep up the great work! Great web site, thanks for sharing. Cambridge UK
Sally & Katie
Original Post 12/02/06
God Bless ALL of you! Have a safe & happy Holiday
Big Joe
Original Post 12/03/06
I am parent from the web-group. I have spent the past year learning about one of the items on his MRI. I am going down the list exploring the items one by one. I am currently trying to learn more about Polymicrogyria. I'm off now to explore you very interesting Web page
Bethany Kientzel
Original Post 12/03/06
Daniel John you are getting so big and growing so fast. I have seen so many changes and growths in you that some thought would never happen. You are a strong and happy boy. I treasure everything about you and know you will make it through all the tough times. Stay strong and smile. I LOVE YOU! Your biggest sister caity-lynn :)
Sister Caitlin
12/03/06
Have a happy and safe holiday.
Rachel Burton
Original Post 12/03/06
To all of the Sprangers~ I absolutely love the website! Thanks for sharing it with me. I miss you, Daniel. I hope you all get feeling better soon. Hope to see you on Wednesday.
Mary Myers
Early Intervention
Original Post 12/04/06
Hello Daniel! You are such a big boy and an inspiration to Savannah, 5 months lissencephaly/PMG
LaKeasha McDaniel
Original Post 12/04/06
Heard you were hoping to get guests from all 50 states. I'm sending this from Montana, so you can cross that one off your list!
Kate Hagen, Montana
Original Post 12/04/06
Hope you have a great holiday.
Jennifer Dugan
Original Post 12/04/06
I don't know who's more amazing, Daniel or his parents for loving him so much. You are both a model to live by. Your website touched me in so many ways.
Anna Hurley
SLP Therapist
Original Post 12/05/06
Congrats on the EEG results! You are doing so great - I loved your new shoes at school today. Keep up the good work!!
Stephanie Onyx
Original Post 12/06/06
To the Spranger Family, what a beautiful website, your Aunt Aimee email it to us and we were truely touched by it. Keep stong and enjoy the holidays.
George & Myra McDermott
Original Post 12/08/06
Thank you for sharing your story with others. The power of love and faith is amazing-he is a lucky little guy to be surrounded by both!
Dina Bansen
Original Post 12/08/06
We love you so much Daniel... you are an amazing little boy... you are beautiful and i love you... loving you forever
Alexandra
Original Post 12/08/06
congrats daniel on the results of your test!
Caitlin
Original Post 12/08/06
I love the site! Daniel you are such a cutie!!! Praying for many blessings your way!
Norma & Cody Freymuth
Original Post 12/11/06
Daniel, you are such a beautiful soul. I love your smile and your willingness to grow stronger and stronger everyday. Your mama and daddy are wonderful parents (i can tell from the videos) and I'mm sure you feel warm and happy and safe in their arms. Thank you Danile for letting me be a part of your world. Carmen, Nick and Lily Rose
Carmen Morris
Original Post 12/11/06
Hi Daniel, I'm Lamphere's new Director of Human Resources and today I had the opportunity of touring your classroom. Your teachers, Ms. Horvath and Ms. Meyers, told me all about you and your web site. I'll be keeping my eyes on you. I hope to meet you someday soon. Happy Holidays! Rita Lewis
Rita Lewis
Early Intervention
Original Post 12/15/06
Hi Daniel! You are such a wonderful little boy we enjoy watching grow up. I love your smile! You are a gift from God to all of us. I love you. Uncle Jeff
Uncle Jeff
Original Post 12/17/06
I'm always so interested in hearing about your amazing progress. Keep up the hard work.
Donna Warrick
Original Post 12/17/06
Hey Santa Baby.....very very cute Daniel! xoxoxoxoxoxoxox
Aunt Aimee
Original Post 12/21/06
Merry Christmas Daniel! xoxoxoxoxoxoxox
Aunt Mary
Original Post 12/25/06
Merry Christmas Daniel! I hope you enjoy your travel size Elmo and that you get your Medical Alert Braclet soon. Have a Merry Christmas and enjoy your week with mommy, and your sisters!
Caitlin
Original Post 12/25/06
Hope you had a Merry Christmas, Daniel. We love you and can't wait to see you again.
Aunt Karrie, Uncle Vince, Dillon & Rocco
Original Post
12/27/06
HAPPY NEW YEAR 2007, Daniel. We love you.
Aunt Ann, Uncle Mike & Blair
Original Post 01/01/07
oh your so cute. i love your new hair cut.
Caitlin
Original Post 01/06/07
Just wanted to say that I posted a little something on my blog, so hopefully some people will come by and give you a little boost. Take care, you have all my very best wishes.
From Robert Rummel-Hudson
Original Post 01/10/07
Hello Daniel. I have read your page via Rob's website for Schuyler. I wanted to tell your mommy that I once got a DynaVox for a former consumer of mine. It's very very cool and it lights up at night and does all kinds of neat things. I will read your story today, but I just wanted to say hello first. Shannon Best Austin Texas www.porterandabigail.blogspot.com
Shannon Best
Original Post 01/11/07
Came over from Rob's page. Best wishes for continued success in all your efforts. It sounds like that little angel was entrusted to determined parents.
Kinzie
Original Post 01/11/07
God bless you, sweet angel. My prayers are lifted up for you. A thousand miles begins with a single step.
Donna
Original Post 01/11/07
Hi Daniel. I found your site through Rob's page about Schuyler. My daughter Caitlyn is 3, and was diagnosed with Rett Syndrome last year. Congrats to you guys on finding a great seizure med. I know you are dancing with joy! Our prayers will be with you and your family.
From Rebecca & Caitlyn
Original Post 01/11/07
Hey Big Guy : ) lookin' pretty great gettin' all "Footloose" - I love it !! Keep up the good work - things have a funny way of working out . God Bless xoxox P.S. I'll spread the word / saw this on Rob'site
Dawn
Original Post 1/11/07
Dear newbie?s to Daniels webpage, I am Caitlin, Daniels biggest sister. I just wanted to let all of you know how much my family really does appreciate all your blessings and support. It brings tears to my eyes knowing that there are excepting, caring and loving people out there like you. Thank you for your messages. Sincerely, Caitlin
Original Post 01/13/07
Continue to pray for you little guy. You are truly a cutie.
Norma & Cody
www.codyspencerfreymuth.com
Original Post 01/13/07
Wow Daniel you have alot of supporters out there. Today I had two donations given to me. Thank you so much Mrs. Donna Yates and to the Norwakowski family. Yippy!!!
Caitlin
Original Post 01/17/07
dan dan you are so wonderful
anthony tamm
Original Post 01/17/07
Hi Spranger Family, You guys rule! And Daniel, you are one cute, brave kid!!
Sarah
Original Post 01/19/07
Go Daniel! Congrats on being seizure free for almost a year! My daughter Julia also has infantile spasms and we've acheived seizure control with Vigabatrin too. We don't know what caused her IS, though. I hope Daniel continues to prove the medical community wrong.
Lisa
Original Post 01/21/07
Hi- I just read your journal and want to tell you about what we did when our micropreemie (25 weeker) was diagnosed with severe apraxia. We got Carlson's brand fish oil from Whole Foods because it is the best in the world for being chemically free. Every night, she would get a spoonfull of that and then a spoonfull of a flax blend oil. There are a lot on the market. The key is to mix Omega 3s with Omega 6s. Anyway, she did do speech therapy, so who knows what works, but she is now ahead of actual age in speech and no longer apraxic.
From "e"
Original Post 01/21/07
my little boy is called Joel, he's 7, and he too has cbps. Sending a hug from Hereford, England, because sometimes they can make a world of difference to a day :-) Thanks to schuyler's daddy for pointing you out!
Beth
Original Post 01/24/07
Daniel~ i missed you today. i hope you are feeling better. i was so looking forward to seeing you. Your wonderful smile makes my day. Let me know how you are. Love, Mary
Mary Myers
Early Intervention
Original Post 01/25/07
Hi Daniel - I'm another visitor from Rob's site who is sending all my best wishes to you and your family.
Michael
Original Post 01/28/07
Hello, this is Lonnie's old neighbor on Stephens. Hi Lonnie, if there is something that I can do to help you guys out please contact me or tell your mom. We are not rich or anything but I can do lots on the computer or make phone calls for you or track down information you need. My sister is a nurse and she has ways of finding organizations or funding maybe that would be of help to you now or in the future. Your son is adorable and I know he is a blessing to you. I have a nephew who is autistic and I know some of the challenges of having a Special Need's member of the family. He is our pride and joy and he is 16 now. I will keep Daniel in my prayers and please feel free to call me if there is anything I can do to help you out. Your Website is great and I spent well over an hour reading it and going through the photo's. Your wifes daughters are beautiful by the way!! Anyways I wanted to say hi and Wish You All a Blessed Day. Love Ya! PAT-T ann
Pat T
Original Post 1/29/07
Hi Daniel I will look forward to seeing you at the fundraiser on Feb 17.
Donna Warrick
Original Post 01/31/07
Hang in there! My Granson Micheal was born with many birth defects, actually we didn't think he would make it through his birth! But here he is 2 yrs old and the light of our lives! God Bless your family! Cindy
Cindy Edgett
Original Post 02/01/07
Daniel I will pray for you little one... God Bless
From Marti Corrales
original Post 02/01/07
also have a child with special needs. He is 27months now. (Well almost) He was diagnosed with Spina Bifida, hydrocephalus, weak diaphragm and partial holoproensephaly (a brain abnormality). Despite all of this he has overcame a lot of it and is doing quite well. I hope Daniel continues to overcome his. Best of thoughts to him. Cindy Edgett signed down below she is his Grandma.
Crystal Wilde
02/01/07
Daniel, You are a very cute little boy! I hope you can do as well as Cindy Edgett's grandson. You two are loved by many, many people
From Amy Elarton
Original Post 02/01/07
My grandson has some problems also, the most important thing is to stay strong.
From Rosalie Wahl
Original Post 02/01/07
Yea! You got your walker! Watch out mom, here he goes!!!!
caitlin
Original Post 02/06/07
Can't wait to see you walking big guy!
Aunt Aimee
Original Post 02/06/07
We missed you at school today - slacker!!! All the therapists ganged up on me!
Drew
02/07/07
Hello Daniel I am Drew's Grammy.You are such a cutie and I'm so glad that you are Drew's friend in PT. I know that you and Drew CAN DO IT! Love Drew's Grammy Tina
Tina Onyx
Original Post 02/08/07
Hello from Alaska!
From julie Bednarski
Original Post 02/11/07
Daniel will be in my thoughts and prayers.
Suzy Sommerfield
Original Post 02/12/07
Austin has had a Medic Alert bracelet since about 6 mos into our IS/epilepsy journey. He spends the days with his great grandparents. Better safe then sorry I say. Jen mom to Austin from IS group
Jen
Original Post 02/12/07
YEAH!!! Daniel, 1 year with no seizures! YEAH Daniel!!!!
Aunt Aimee
Original Post 02/12/07
We love you so much-- So excited for this weekend, its going to be fun! Hey bubba... you're a hottie and i miss you but i will see you soon I hope you enjoyed your Valentine's Day..I'll make sure to give you a kiss! xoxxo MUAWH Later Bro!
Brittany & Tayloe
Original Post 02/15/07
O
i would like to come to the fundraiser at the bowling alley. i continue to keep daniel in my prayers.
Tyler- Tori's Friend
Original Post 02/24/07
Hey little bro'! How's my peanut? Hope all is going well and that your feeling good. LIke the new web page, looks really good! See you later, gator!
Caitlin
Original Post 02/28/07
hey lil bro... im so excited that we get to spend all this time together now... i love you... and i love your new teeth they look amazing... i love you
Alexandra
Original Post 03/07/07
Hey Daniel it was great seeing you (your mom and Alex too!) yesterday! xoxoxoxo
Aunt Mary & Katie
Original Post 03/08/07
Love the piano playing Daniel, you got your daddys musical talent! You'll be rockin' and rollin' soon
Aunt Aimee
Original Post 03/18/07
Dear Daniel, I learned about your website this weekend and have enjoyed learning about your life and seeing pictures that show how beautiful you are. I used to work with your dad, for about 4 years. What I remember most about working with your dad is that he could always make us smile and laugh (really laugh, the belly busting kind of laugh). It looks like from the pictures that he is able to do that for you and your family. I hope you continu to grow well and strong, and know that I too am praying for you. God Bless ! Jane
Original Post 03/18/07
I learned about your website today from your Mom's posting on the Yahoo PMG Group. I live in Michigan too with my daughter who also has PMG. I loved checking out your website, what hard work someone who loves you very much has done to make it so very special. You are a very good piano player and your one year video made tears come to my eyes. What a great family you have! You are making amazing progress, keep up the good work! Take care
From Shelley and Alyssa Jepson
Original Post 03/22/07
that little guy from youtube looks just like daniel john. i would totally sponser daniel. i dont understand why you cant try the sessions if they wont hurt him... i would be very persistant about it mom. love ya
Caitlin
Original Post 03/26/07
I'll be in touch.
From Robert Sherwin, MD
Original Post 04/03/07
Hi Daniel, love the site, you're one great kid, keep up the hard work it'll be worth it in the end. I loved your photos and the poems. I'd love for you and Daire to meet up sometime. XXX
Wendy Hendrick
Original Post 04/03/07
Yahh for Dr. Sherwin. I hope it works out for you Daniel.
Auntie Ann
Original Post 04/04/07
You are the cutest little boy and it sounds as if you couldn't have any better parents. Hope the Easter Bunny is good to you and everyone. Say hi to Mom and Dad and your sisters.
Great Aunt Jane Beaupre
Original Post 04/06/07
Hey Daniel! Awesome piano playing! I hope you had a wonderful Easter and I'll see you when I get home :)
katie
Original Post 04/09/07
Such a cute and inspirational little boy. Way to go Daniel.
Cousin Nicole Carlson
Original Post 04/10/07
I would kust like to send good wishes and good thoughts to Daniel. His Great Grandmother send her love too. We both think he is very beautiful. Love, Nancy
From Nancy (Spranger) Correa
Original Post 04/10/07
Hi Daniel! I hope this finds you happy and growing into a big boy! You are probably wondering how and why we share the same last name...well...I am a first cousin of your grandpa Mouser and your Aunt Nancy I adored your grandpa growing up (he was two years older than me), even when we were children, he was quite the character, always fun, creative and needless to say very mischievous! I worked at Beaumont Hospital for ten years before moving to Arizona, you are in such good hands there. It was very nice to know your physical therapy is being done there and you are doing so well! Take care Daniel, I will keep you in my prayers! Big hugggggggggggggggggggssss! Linda
Linda Spranger
Original Post 04/11/07
I just found your page - thank you! It seems like it has some helpful links on it. I have a 10 month old son with brain damage
Tiffany
Original Post 04/12/07
My 16 month old daughter has had IS since she was 8 months old, she is very special and beautiful and we are very hopeful for a bright future for her, all the best to your family keep up the great work Daniel!!
Alicia
Original Post 04/13/07
love the new videos Daniel! You sure do know how to make me laugh! Good luck with getting into the Ronald McDonald House :) Love Ya, your biggest sis
Caitlin
Original Post 04/14/07
Love the walking Daniel. Keep up the good work!!!!!
Valerie
Original Post 04/19/07
Had a great time at the fundraiser! Definitly enjoyed the bowling. Hope it went as well as expected.
Caitlin
Original Post 04/22/07
HELLLLOOOOOO Daniel. i miss you and mom already hope you have fun with your new school next week!
Brittany
Original Post 05/03/07
Hey Daniel Baby~looks like you are working very hard at school. Good job! Give your Mom a hug for me! xoxoxoxoxoxox Aunt Mary
Aunt Mary
Original Post 05/09/07
Keep up the good work Daniel! We are sooooooooooooo very proud of you! Aunt Mary, Uncle Jeff, Katie and Brandon
Aunt Mary
Original Post 05/14/07
daniel... u are getting so big... and heavier than i thought... you are such a smart little boy... i hope that you succeed in all of your dreams and goals... keep going buddy... see you when u get home... love always... your big sis alexandra
Alexandra
Original Post 05/15/07
we are glad to have met you at clc and the rmh. we wish you well in your journey, your family is beautiful!
From joseph leckenby
Original Post 05/16/07
we all noticed that you left the rmh and clc, we miss you and your morning smile. we hope everything is okay. love, julie and joseph
Julie & Joseph
Orignal Post 05/18/07
Keep up the good work in the coming week at CLC Daniel and Melanie. You're both doing great! Very proud of you.
Aunt Ann
Original Post 05/20/07
You are so cute Daniel maybe one day you and my three year old brother can be buds.
Bailey Harris
original Post 05/22/07
Hey Baby D! Hows it going? I just talked to you on the phone. Your in my prayers lil bud.
Brandon Harris
Original Post 05/22/07
Daniel doesn't deserve the life that he's gotten. But with a sister as amazing as Tori, his odds look good. I'm sure that he'll prove to be more than anyone ever expected. Love, Zoe.
Zoe Fields
Original Post 05/23/07
hey Daniel, It was fun seeing you at all those basketball games. I hope to see you at more of them. Love, Alex Bleecker
Alex Bleecker
Original Post 05/23/07
Hey Daniel, how are you doing? I miss seeing you at the basketball games. Love, Ashley
Ashley
Original Post 05/23/07
Hi Daniel, I hope we can hang out more at our sisters Basketball games. Love, Abby
Abby Bleecker
original Post 05/23/07
Daniel, You are such a cute little boy with a very big smile!!! We all love seeing you and hope to see you soon. Alex's Mom
Ann B.
Original Post 05/23/07
Daniel Hope to see you soon. You always put a smile on my face. Alex's Dad
Jim B.
Original Post 05/23/07
Hang in there buddy!! Bleecker
Andrew Bleecker
Original Post 05/23/07
Alex and I just watched your giggle video and piano man video and laughed alot. The Bleeckers. P.S. You are so cute!!!
Ann B
Original Post 05/23/07
the love and support pours out of these pages. you are an inspiration to us all. never give up hope and always enjoy life. you have touched my heart forever.
From julie leckenby & Joseph
Original Post 05/25/07
hey daniel, i havent seen you for months! youre one of the cutest kids ive ever seen, honestly. i hope everything comes well for you and your family. much love, xoxo
From Besa Karanfili
Original Post 05/27/07
It was nice to see you yesterday, Daniel, at Grandma's surprise party. You certainly are a pleasure to be around. I love you!!! xoxoxoxoxoxox Aunt Mary
Aunt Mary
Original Post 06/04/07
Hey Mel- Check out Daniels wheels! You should get him some rims and totally pimp it out! LOL. Good to see you in the video too. You look fantastic. Hugs for the girls. XOXO
Christine Hart
Original Post 06/07/07
Loved the chair ride video, Daniel, you looked like you were having a blast! Keep it up Big Guy
Aunt Mary
Original Post 06/09/07
What an amazing boy! My twins were born at 27 weeks, so I can relate to you and your family. You can visit our site at www.littlecharlierocks.com. I'm saving your site as one of my favorites so I can keep up with how you are doing... Christy
Christy Davidson
Original Post 06/11/07
Looks like you're getting some cool new tools! I came over from Holland and Eden's website.
Katherine
Original Post 06/11/07
Sweet chair, Daniel! You have your own cheerleading section! Hugs for you, Mel! Miss you!
Jen Barron
Original Post 06/12/07
checking up on you Daniel and it looks like you have been a busy boy. Wow ! I don't know how your mom keeps up with your schedule, I do know (from experience) it is exhausting.
Julie L.
Original Post 06/14/07
The Pictures were beautiful to say the least. Thank you for sharing them. Even though we've had the dx of PMG for 4 years now your words of wisdom were encouraging. Daniel is so lucky to have you as parents. This was very uplifting emotionally. Take care Blessings,
Bonnie Zagrovich
Original Post 06/19/07
Daniel - I miss our Wednesday playdates - we'll have to catch up soon. Your buddy- Drew
Drew Onyx
Original Post 06/25/07
Daniel, I love the new haircut!!! Glad your test went well. xoxoxoxoxoxoxoxoxo
Aunt Mary
Daniel, I loved the story about the flower. Thank you for sharing it with me. Keep up the hard work.
Julie Leckenby
Post a Comment