Monday, October 15, 2007

WE ARE DONE!!

NO MORE ACTH SHOTS!!!!


We are so doing the happy dance!





Saturday, October 13, 2007

Pumpkin Patch

Even though Alexandra just had her baby and is still in the hospital, the rest of the family went on the annual family pumpkin patch trip. All went well, Daniel even got to ride the pony this year. Even though it was a bit chilly, it was a good time. Here are some photos to show the fun.






Here is Daniel showing us his pumpkin!

Friday, October 12, 2007

A New Addition...



Alexandra is a Momma!


Zachary is Here!
7 lbs 1 oz.
20 inches long





This all makes Daniel ......................his UNCLE!!!

Check out the facial expressions when he is first looking at Zachary


Here comes the scowl.....
Then...Hey he's pretty cool!



We won't even mention what this event makes me!

Wednesday, October 10, 2007

OOOPS! I forgot a birthday

OOPS I forgot an October birthday but I have an excuse!

She is new to the family! Happy belated Birthday Kendra!

October 6th!

Tuesday, October 9, 2007

ACTH - Week Six..........

yahooooooo!

6 more shots to go!


Well, today we did the final wean. We are at .06 ml per shots. We are in the finally week and I can't wait for it to get over with. We are doing really well. He is still a little cranky, and the sleep isn't the greatest. We have an early riser, and neither Lonnie nor I are morning people! HA HA


Daniel had his Echo Cardiogram today to make sure that his heart wasn't enlarged from the ACTH. And the doctor that reviewed his test said everything looked good. So keep your fingers crossed that the seizures stay away, that his heart stays the right way, and that he gets his normal bubbly happy personality back. I do miss the days when he didn't cry.


This coming weekend, Alexandra's labor pains permitting, we will be going to the pumpkin patch to pick a pumpkin. We'll have to post pictures of our exciting adventure to seeing the Great Pumpkin!

Tuesday, October 2, 2007

Week 5 - ACTH........We're Doing the Count Down!


Well again today being Tuesday, we did another lowering of the dose. We are now on .125 ml of ACTH. My poor little guys legs look like pin cushions...holes all over with little tiny bruises.


Only 13 more shots!!!!


I would do the happy dance again but our legs are still exhausted from our happy dancing earlier in the week!

Daniel was due to have an echo cardiogram (required after 4 weeks of ACTH) this week, but because of unforeseen circumstances out of our control, it has gotten rescheduled until next Tuesday. So hopefully that comes out well, with the only evidence being that Daniel does have a heart, and yes it is beating correctly. We do not want to see an enlarged heart!

The Chloral Hydrate that we got prescribed for Daniel has worked wonders, there is such a change in him. And to think that all that time he was cranky, all he wanted to do was sleep and couldn't. Poor Baby.


I am so happy we are almost done with the ACTH but then on the other hand, I am nervous that once we are off it that the seizures will come back. Hopefully I am wrong!


We are still waiting for Alexandra to have her baby. 11 Days until the actual due date and counting.


Need to do the Happy Birthdays for this month as there is a lot so we'll just list them here. Seems that October is a busy month for my family.

So here goes

Oct. 2 - Uncle James
Oct. 4 - Uncle John
Oct. 8 - Cousin John Paul
Oct. 8 - Cousin Dawn - she's 30!
Oct. 9 - Aunt Aimee
Oct. 13 - Cousin Adam
Oct. 16 - Cousin Tracy
Oct. 20 - Uncle Mike
Oct. 31 - Cousin Katie

and somewhere in there hopefully is Nephew Zachary!

(Isn't that a hoot, Daniel will be an Uncle at 2 yrs old!)