Well, its been a while since we posted.
Not because of lack of things to post about, but because we've just been kinda keeping it on the low-down and taking things slow and easy.
Its been a lot of getting into a new groove, a new schedule. Getting use to the flow of our life being thrown up in the air a little bit!
Many things have changed -
* the school thing
* the therapy schedules
* the sleep schedules
* the insurance (through the state) fiasco
* Daniel getting use to be around the mom/dad all the time 24/7.
* the busy crown making production line in the house!
Needless to say, we are handling the changes really well. Still making some changes and getting things in order but otherwise...pretty good.
I wanted to say thanks to everyone who offered their experience and knowledge in both the tube feeding and the home schooling issues. I got many emails, some posts and a ton of links to homeschooling blogs, and informational sites. So many that I think I might have my whole school year planned already!!
Daniel's speech therapist from Novi has been awesome too coming up with ideas of getting Daniel 'school' ready and such, so I borrow a ton of ideas and even some equipment from her! (Pictures to come later!) We are still waiting on getting the new IEP scheduled...
Daniel is really doing well at home, and thankfully we've had some nicer days and I've been able to get him outside in the yard. He absolutely thinks that the crunching of the leaves on the ground is a hoot. I've got him stomping on the leaves and he gets a big kick out of me running him through the piles of leaves in his wheelchair. God forbid that a few of the leaves get stuck in the spokes because that sends him into a laughing fit, which of course gets me going.
So if you happen to be in our neighborhood and see this lady running like a madwoman through piles of leaves with a child in a wheelchair....NO she has not lost her marbles, she is just playing and getting her child the excitement that a typical child gets when running through the leaves.
I am sure he would love for me to lay him on the ground and cover him with the leaves but I can't get past the "prissi-ness" of the gross dirty leaves, possible bugs and yuckiness of actually laying in the grass. UUUUUGH. Poor boy is stuck with a mom that has some sensory issues and can't get past it!! So for now, we run through the fallen leaves and have fun!