Friday, October 10, 2008
STRESSIN' AS USUAL - So what's new with you?!!
So last night we got our "contract" in email from ABR Canada. Many mixed feelings here with this subject.
*This could be the thing for Daniel
*It is non evasive
*It can be done while he sleeps
*They focus on the head/trunk first - which is where Daniel needs most of his help
*There are measurable to see if he is improving (in my eyes)
* Just have a gut feeling, that this is going to make him flourish this year
*This might NOT be what is for Daniel
*It is a LOT of money, that we could be potentially pissin' away
*Again, its expensive (my eyes) but i would not forgive myself if we didn't do it and it could help him.
*The ABR machine that isn't necessary but that can double and triple the ABR hours applied has a high monthly rate (like adding a car payment).
To an already stretched budget. I will just feel really bad if things don't work out and we have used all this money for nothing. But as with any therapy, or different treatment you have to try it right. The thing that sucks is its not like taking a sip test of a drink to see if you like it. It takes months, years to see really good results. It is a huge thing. Can you tell I'm stressing about it. I keep going back and forth. We're going, no we can't its not feasible to go financially. I HATE this feeling. I want to go, I really want to try this for Daniel. Give it a year and see if there is progress. At least 3 hours a day for the next year, might sound like a lot to some people, and really it is, but if it means your child sitting up, or walking......3 hours is nothing. If I didn't do it and he can't sit or walk unassisted, I took that away from him because I couldn't' manage 3 hours of my day?? Come on??
OK so I have to put things in perspective....Daniel potentially being able to walk, or my house being clean?
Daniel being able to control his arms better, or the laundry done? And if this type of treatment doesn't work........
OK so what then for a year my house is not the cleanest, and no one is wearing clean underwear for a year.........BIG DEAL!!
Daniel is still doing this gagging thing and I don't think its reflux anymore....or if it is then the meds we're giving him aren't working!! Went to the pediatrician yesterday and she is consulting with his ENT and a gastrointestinal doctor to see what we can do. It is very difficult to get a diagnosis when we're playing a guessing game. This is where the non-verbal issue gets me flustered. I wish I could just climb in his little brain and help him form the words. It just sucks, seeing on his face he wants to say something and he can't. Imagine what it must be like in his world.