Wednesday, September 26, 2007

Doing the Happy Dance!!

We just got back from our 30 minute EEG and visit with Dr. Chugani. After being depressed and saying this ACTH sucks! Well it does SUCK, but it works.
For the first time in Daniel's life, I am very proud to say...

THERE ARE NO SPIKES
THERE IS NO HYPSARRHYTHMIA
THERE ARE NO SEIZURES OF ANY KIND
thank you thank you thank you thank you thank you thank you thank you thank you
Dr. Chugani also prescribed some Chloral Hydrate to help Daniel sleep only while he is on ACTH.
He said that he is probably cranky and not wanting to do anything BECAUSE he is so tired. So hopefully after a few good nights sleep he will be more active and be back to his old self.
His labs came back a little off but he said nothing to worry about. His glucose was 122 but again nothing to worry about. The past few days I have been worrying that Daniel isn't peeing as much as I think he should. So I was all ready to ask Dr. Chugani about it, but before we went to the appointment his pediatrician called to tell me his electrolytes were low and he was looking dehydrated............(reason why he wasn't peeing!) and he is probably dehydrated because he went from drink a few bottles a day to hardly any because all he wanted to do was eat eat eat. He went from eating a 1/2 jar of the small jars of baby food to eating three or more. So I wasn't thinking about bottles.........so stupid me. So we have to make sure he is getting at least 24 oz. of fluid a day.


11 comments:

Billie said...

Yippee! I'm so happy to hear positive news for your sake as well as Daniel's. I'm sure it helps to feel a little refreshed, and a little more prepared to face tomorrow.

Jacolyn said...

That's wonderful!!! I hope you both get much deserved rest tonight. God is good!

Michael said...

Sweet!!! Praise the Lord. Hope you can get more rest.

Anonymous said...

WOO WOO!!!! :)

Anonymous said...

Fantabulous!!!!!! What excellent news!!!!

xoxoxoxox
yfa

BusyLizzyMom said...

Congratulations,
You guys have been through a lot lately. Wishing you a seizure free future.
We love the happy dance.
Angi & Elizabeth

Anonymous said...

Excellent news! There will be some good times and some bad. This is defeinately a good time!

Anonymous said...

Excellent news! There will be some good times and some bad. This is defeinately a good time!

Kathryn said...

Woohooo! That is so great especially after all the pain of the treatment for you and Daniel. I am so happy it worked!

Kathryn said...
This comment has been removed by the author.
C said...

Hallelujah!!! Q says congrats to Daniel. We're happy dancing with you--minus the purple hippo and thong. ;oD

Rest well,
Carrie