For the first time in Daniel's life, I am very proud to say...
THERE ARE NO SPIKES
THERE IS NO HYPSARRHYTHMIA
THERE ARE NO SEIZURES OF ANY KIND
thank you thank you thank you thank you thank you thank you thank you thank you
Dr. Chugani also prescribed some Chloral Hydrate to help Daniel sleep only while he is on ACTH.
He said that he is probably cranky and not wanting to do anything BECAUSE he is so tired. So hopefully after a few good nights sleep he will be more active and be back to his old self.
His labs came back a little off but he said nothing to worry about. His glucose was 122 but again nothing to worry about. The past few days I have been worrying that Daniel isn't peeing as much as I think he should. So I was all ready to ask Dr. Chugani about it, but before we went to the appointment his pediatrician called to tell me his electrolytes were low and he was looking dehydrated............(reason why he wasn't peeing!) and he is probably dehydrated because he went from drink a few bottles a day to hardly any because all he wanted to do was eat eat eat. He went from eating a 1/2 jar of the small jars of baby food to eating three or more. So I wasn't thinking about bottles.........so stupid me. So we have to make sure he is getting at least 24 oz. of fluid a day.