Well we are ending day 6 of ACTH, and there are still seizures. Granted not as many, but they are still there.
We aren't really seeing any side effects yet besides he seems to be eating better.
He is sleeping well, and isn't cranky.........anymore than a "typical" 2 year old would be.
The only bad thing is of course that he is now a human pin cushion from getting all the shots.
All of the testing we are doing at home with the urine and stool are all coming up negative which is good. When the visiting nurse was here on Friday, she said his blood pressure was 102/69. This is a little higher then when we were in the hospital but she stated that it was within the range and not to worry about it. HA............worry? who me??? are you kidding? I don't worry about anything!