So when its too cold outside...we bring the fun stuff inside.
Here is Daniel enjoying his swing while I cook some warm food! He loves this swing. He’ll sit in it and reads his books to me. Its the cutest thing, I’ll put him in there with his boppy on his lap and the book. He’ll look at the page and jibber jabber and look up at me to make sure I’m looking at the page, then he’ll turn to the next page and we’ll do it all over again! Its a hoot!
Of course with the cooler weather comes football season. And with football season comes the girls Powder puff game at the high school. Tori played for the Juniors this past weekend and they won against the Seniors 21-14.
Why they would pick Tori (petite little girl) to play center is beyond me! But we were out there showing our support...
With all of her face paint, Daniel didn’t realize it was her at first until she started talking to him. And then he was still a bit leery. She’s #65 or the fool with the black,white and blue strips on her face!
Well it is definitely fall in Michigan. Its cold in the mornings, jackets are needed, and the weather is the type where you just want to stay in the warmth of your bed when the alarm goes off! Of course who wouldn't want to stay snuggled up to this?
We’ve got our own personal furnace. The body heat that radiates off this child is unbelievable! And thank goodness he loves to cuddle up and spoon!
We joke about it all the time and call him “Velcro” because he gets into these moods where he is stuck to you and if you move he will wake up until you snuggle back up!
Even his littlest nephew comes over to snuggle with him sometimes! As you can see he is everyone’s favorite “Snuggle Buddy”
As you know, Daniel has an ECO-14 which in itself is an incredible piece of equipment. This helps Daniel to talk and tell us what his needs and wants are. He accesses it with his hands by selecting the buttons on the screen. Built into his ECO is also the headpointer, which allows people to put a reflective dot on their forehead and it will follow the head movement for the selections. There are other ways to access the device, but mainly using the body.
Another form of accessing the device is with eye-gaze. This is an option that became available on the ECO after we got ours. So, within the last year it came out with PRC. So Daniel's less than one year old device can already be upgraded, click here to see.
I have been waiting a few days to post because I've been trying to think of the right words to explain it. It's at these kind of times that I wish I was good with words and could explain it well enough to get my feelings across. I am sure I will not give the moment justice, but here goes it.
The other day we were waiting in the lobby for our turn with Ms. Pat for speech therapy. She came out and said there was a man there from Tobii Technology and could she try something with Daniel and the Tobii system. Of course, me being me, I was all for it. Being the parent of a special needs child, you will pretty much try ANYTHING if it could help your child.
So, here is what the Tobii Technology offers. The child sits in front of a computer that tracks his eye-gaze. He child then makes his selection without having to move his head but only his eyes. We've tried something like this when Daniel was about 2 years old but he couldn't get his eyes calibrated to the computer back then, and he was too young.
Within mere minutes, Daniel's eyes were calibrated to the computer and he was off and running. Took no explaining to him what was going on, that he needed to look at a selection and hold his gaze for the set amount of seconds to make the selection. He just did it.
With the way Daniel accesses his device now, there is always the "oops he hit the wrong button" because the fine motor skills in his arms just isn't strong enough. We are always saying the he has a "processing delay" because once you ask him something it takes him a few minutes to "process" it and answer. Well that is because of his PHYSICAL issues, not because of his MENTAL abilities.
I stood behind him and watched in amazement. There was NO delay in Daniel making the selections that were asked of him. He was FAST, he sped through the programs. There was even a time when a game was selected for him to play and he did it, then selected the area to go back to the main menu and he selected the original game HE wanted to play, not the game we selected for him.
Again, I am probably not describing it well, but I will tell you it was a moment that took my breath away. It gave me goosebumps. It made me tear up because all along I have said, just give him time and he'll show you that he understands. I have said all along, he is a smart little boy, he just has a body that won't work for him. And right there - in the 10 minutes that Mr. Dan (The Tobii Guy) took to fit in a little boy who was not on his schedule - I was watching my child effortlessly speak through a device and let his voice be heard. EFFORTLESSLY and quickly.
This scene from Forrest Gump stuck in my head and it is how I imagine Daniel felt while using the device for the first time...
I blubbered all the way home, with Daniel sitting in the backseat sleeping. This device opens a whole new world that I knew he was capable of. I am not surprised at what he did because I KNEW he was capable of it all along. But, oh how I wish that every person that has ever doubted this amazing little boy could have been standing over his shoulder with me. I cried because it VALIDATED what I already know. I just wanted to scream, "SEE!?!?!"
So, now begins this parents journey of trying to get the money, funding, approvals to get this for our son. Of course I didn't have my camera during this therapy session, and my phone was dead so no camera there either. But Mr. Dan took a quick little video with his phone. The video is just a small example of how well he did. Check out how quick he is following the pictures.
So, I'd like to say thank you to Ms. Pat for thinking of 'trying' something with Daniel because she always willing to experiment and find ways for Daniel to prove himself. Thank you for being one of the people who believes in him. Thank you to Mr. Dan for taking the time out of his day to open up Daniel's world and coming to the rescue with a camera~!!
Soooo.... To all those "nay-sayers" who said Daniel can't handle things. To the people who think the most he can handle is YES/NO questions. To the doctors who said he wouldn't amount to much. To the person who said he wouldn't be able to handle a device to communicate. To the people who look upon us with pity. To the people who judge a book by the cover and do not take the time to look inside...
You are all going to be invited to a really frickin' BIG party and wanna know who the guest speaker is going to be?
Daniel Spranger, and he's going to have a mouthful to tell you. Something that might involve the phrase "Boo-yah, Beeyotch!" (if he takes after his mom and dad that is!)
Say a big prayer for this little guy and his family. They are here in Detroit visiting with Daniel's neurologist. Well not really visiting but hopefully getting a new lease on Trevor's life. He is having surgery on his brain today in hopes to control the seizures that he has daily. Hundreds of them. That is some scary $hit, I know. Say a prayer for them for a quick and speedy recovery so they can have their Trevor back.
You can check out his progress over at Dear Trevor
:) I haven't been around lately. Things have been very whacked in my household. But I think things shall be settling down soon and I can get my arms wrapped back around the whole sit-che-a-tion.
Yep I got this here award and I'd like to thank everyone! :) So wanna know who gave it to me? Well I'll tell ya....Ken over at Blogzilly. He is one of the few dads out there that I know of that blogs about Daddy things and dealing with issues with one of his children. Now before you run over there to check it out, I gotta tell you this. His son is one of the cutest little guys you'll see. His pictures will melt your heart. Ken is very straight forward and doesn't mince words. I love that about his blog!
So now for the rules of the award, I must follow....(and so must you if you get he award!)
- Put the Lemonade logo on your blog or within your post. - Nominate at least 10 blogs with great attitude or gratitude. - Link the nominees within your post. - Let the nominees know they have received this award by commenting on their blog. - Share the love and link to the person from whom you received this award.
Today Daniel and Caitlin made homemade play dough. I used to make play dough all the time with the girls when they were younger. We’d modify the recipe all the time and use powdered kool-aid mix to make it smell better and brighter colors. Well Caitlin being all grown up now and making it for the kids in her classroom came up with this concoctions.
Of course she had Daniel helping mix everything up with his own cooking stuff (IKEA has the best kid-size pots and pans!)
We also got this really neat little table that he can roll right up too. Its adjustable and is great for so many activities!! (Another IKEA find)
So incase any of you other wonderful parents out there want to get into the fall season and Halloween/thanksgiving time. I have supplied the recipe!
Very simple – homemade ingredients so if someone by chance decides to chomp on a piece of the play dough, they shouldn’t get sick!
1 c cold water
1 Tbs vegetable oil
1/2 c salt
1 Tbs cream of tartar
2 drops red food coloring
3 drops yellow food coloring
2 Tbs pumpkin pie spice
1 c flour
Combine water, oil, salt, cream of tartar, and food coloring in saucepan, heat until warm and salt has blended. Remove from heat and add flour, until slightly thick and then put on a floured counter (so it won’t stick).
Add slowly an additional cup of flour or more as needed . Knead in the extra flour until a good play dough consistency.
Note: The recipe calls for 1 c of flour but we always end up adding somewhere around 2 cups. This can be stored in a zip lock bag for 6 months. Or you can put it in a little container like we got from the $1 section at target.
We're still alive (barely - sick). Just so much going on and no energy or time to update. We will this weekend. We have some nice video of Daniel riding his bike, and other fun stuff.!!!
Ta Ta for now. If you're a Michigander - Hope you're enjoying the Michigan changing of colors!
