tag:blogger.com,1999:blog-8484842560584031366.comments2023-06-21T19:44:41.040-04:00better than normalMelaniehttp://www.blogger.com/profile/14976460220405392152noreply@blogger.comBlogger2593125tag:blogger.com,1999:blog-8484842560584031366.post-66500670066495728382012-11-24T23:11:58.615-05:002012-11-24T23:11:58.615-05:00I really dont know much of what your child can do,...I really dont know much of what your child can do, but would something along the line of popscicles work?Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8484842560584031366.post-17658641525431596822012-11-24T14:29:06.291-05:002012-11-24T14:29:06.291-05:00Hello I was just looking around on blogger and cam...Hello I was just looking around on blogger and came across your blog, your have a really nice blog here, am sorry to hear that your having trouble with Daniel's drinking. Im sure he will come to terms with it soon he is a beautiful child :)<br />Keep Smiling, Take Care <br />xAnonymoushttps://www.blogger.com/profile/07669412425269634291noreply@blogger.comtag:blogger.com,1999:blog-8484842560584031366.post-15106215625182240692012-10-29T08:01:08.710-04:002012-10-29T08:01:08.710-04:00This comment has been removed by a blog administrator.Maalaihttps://www.blogger.com/profile/10911533873391978018noreply@blogger.comtag:blogger.com,1999:blog-8484842560584031366.post-53549310780535560462012-10-26T08:30:46.235-04:002012-10-26T08:30:46.235-04:00Just happened across your blog, and glad I did. Da...Just happened across your blog, and glad I did. Danielle is such a beautiful child. So sorry to read of the issues you're having with him not drinking since the hip surgery. My daughter had hip surgery, but had a g-tube so we didn't have that issue, but I remember before the ng-tube and g-tube, it seemed if the staff at the hospital didn't work with her, she would forget how to suckLeehttps://www.blogger.com/profile/14912552139114265707noreply@blogger.comtag:blogger.com,1999:blog-8484842560584031366.post-89085816385111580092012-10-25T21:54:49.647-04:002012-10-25T21:54:49.647-04:00what about his communication device? can he offer ...what about his communication device? can he offer any thoughts using it? i know these are kind of abstract, but could he tell you that he can't do it, or that it hurts to suck from is bottle, or if he wants a different position, a different flavor, or if the formula is yucky now? or even that he's just mad or frustrated about the situation? maybe once his feelings are validated he'Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8484842560584031366.post-76688518581220658272012-10-25T21:15:48.176-04:002012-10-25T21:15:48.176-04:00have you looked into adding duocal into his formul...have you looked into adding duocal into his formula? it won't help him drink more, but i'll add some calories to it without adding bulk! <br /><br />if he was intubated, sometimes the throat can be sore for a few weeks post-op? maybe he has a sore throat? is he expecting any molars coming in? my son won't drink from a sippy cup (with a valve) if he's teething. our pediatrician Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8484842560584031366.post-90484345638911427232012-10-12T08:46:13.045-04:002012-10-12T08:46:13.045-04:00After Emma's surgeries she didn't eat or d...After Emma's surgeries she didn't eat or drink much at all. It was quite worrisome as she is already very skinny, but after about 2 weeks she slowly became more interested in drinking. Just a suggestions - does Daniel like milkshakes? That was what started to bring Emma around. I think the cold drink was nice for her throat. She had a preference for vanilla milkshakes for a while Kristinahttps://www.blogger.com/profile/13259709507156454270noreply@blogger.comtag:blogger.com,1999:blog-8484842560584031366.post-20139443892073303932012-10-11T14:58:34.997-04:002012-10-11T14:58:34.997-04:00Thanks Mel & Rebecca. I'm not sure whats ...Thanks Mel & Rebecca. I'm not sure whats going on, but that is a good thought Rebecca! That hadn't crossed my mind about the taste. He is slowly starting to drink the formula again, but not sucking from the bottle. He could drink 8-16 oz. in about 20-30 minutes before. How with me squeezing it into his mouth it takes a good hour for 8 ounces.Melaniehttps://www.blogger.com/profile/14976460220405392152noreply@blogger.comtag:blogger.com,1999:blog-8484842560584031366.post-41045327235239262302012-10-10T17:08:29.714-04:002012-10-10T17:08:29.714-04:00I wonder if foods/formula taste different after th...I wonder if foods/formula taste different after the anesthesia for him? Would he try a milkshake or something that has a different taste than his normal formula?Rebeccahttps://www.blogger.com/profile/08188442892632236614noreply@blogger.comtag:blogger.com,1999:blog-8484842560584031366.post-33122363297885427092012-10-10T10:07:54.357-04:002012-10-10T10:07:54.357-04:00I hope Daniel starts eating better soon!! Praying ...I hope Daniel starts eating better soon!! Praying for Daniel and your family as you go through this difficult recovery period!!!Melhttps://www.blogger.com/profile/12248072913771890211noreply@blogger.comtag:blogger.com,1999:blog-8484842560584031366.post-49734546019360015532012-09-25T07:31:10.563-04:002012-09-25T07:31:10.563-04:00We just got Emma's Eco2 with ECOpoint and are ...We just got Emma's Eco2 with ECOpoint and are so excited! We are in the "setting up" mode right now. I noticed you said Daniel is using his system to talk to you in the car. How do you mount it for his talking in the car? Also, could you share a bit more on how you started him talking with it, how you incorporate it into your day (such as do you take it room to room, use in Kristinahttps://www.blogger.com/profile/13259709507156454270noreply@blogger.comtag:blogger.com,1999:blog-8484842560584031366.post-65271213593187034492012-09-09T23:17:03.821-04:002012-09-09T23:17:03.821-04:00I am rewlly excited to get a
Daniel update too!!!...I am rewlly excited to get a <br />Daniel update too!!! Hooray!<br />7 years olds are awesome even with their love of fart jokes!<br />I love the idea of an AAC meet up, looks fabulous. Thinking of you both as you approach surgery xxxSmithsholidayroadhttps://www.blogger.com/profile/03614441021886602077noreply@blogger.comtag:blogger.com,1999:blog-8484842560584031366.post-17430713997911821012012-09-06T18:27:48.741-04:002012-09-06T18:27:48.741-04:00So happy to hear things are going well. Can Danie...So happy to hear things are going well. Can Daniel really be 7 now? That just seems crazy to me. He is still as cute as ever! Love that he is rocking his device and enjoyed riding a bike, playing ball and swimming all summer. That sounds pretty wonderful!Wherever HE Leads We'll Gohttps://www.blogger.com/profile/15042627234253638468noreply@blogger.comtag:blogger.com,1999:blog-8484842560584031366.post-47923953225968662032012-06-08T17:53:32.788-04:002012-06-08T17:53:32.788-04:00love love love! thanks for sharing!!love love love! thanks for sharing!!Doodle Bugshttps://www.blogger.com/profile/00749148278717156267noreply@blogger.comtag:blogger.com,1999:blog-8484842560584031366.post-20641422691478892742012-04-17T22:43:03.997-04:002012-04-17T22:43:03.997-04:00That is such a cool idea :). I love it!That is such a cool idea :). I love it!jamiehttps://www.blogger.com/profile/11209185117648248159noreply@blogger.comtag:blogger.com,1999:blog-8484842560584031366.post-33694330578413146942012-02-05T21:34:45.227-05:002012-02-05T21:34:45.227-05:00You are awesomely creative. I love it.You are awesomely creative. I love it.Nicolehttps://www.blogger.com/profile/05863697937349280967noreply@blogger.comtag:blogger.com,1999:blog-8484842560584031366.post-80232206320699888722012-02-05T07:52:56.388-05:002012-02-05T07:52:56.388-05:00Oh Melanie...LOVE that masterpiece!
...dOh Melanie...LOVE that masterpiece! <br /><br />...dDanielle https://www.blogger.com/profile/04484341169494632974noreply@blogger.comtag:blogger.com,1999:blog-8484842560584031366.post-12733197473344298852012-02-03T07:37:22.235-05:002012-02-03T07:37:22.235-05:00Holy smokes...this line...
"And Damn it, he ...Holy smokes...this line...<br /><br />"And Damn it, he was going to enjoy it!"<br /><br />Had me just about spew coffee all over my keyboard! I can totally picture Bristel saying that about Trevy's "lesson plans" that she creates! <br /><br />I *heart* this post! And your little man! <br /><br />...danielleDanielle https://www.blogger.com/profile/04484341169494632974noreply@blogger.comtag:blogger.com,1999:blog-8484842560584031366.post-46912702643942372912012-02-02T23:09:38.216-05:002012-02-02T23:09:38.216-05:00I love it!!!! How creative to incorporate all that...I love it!!!! How creative to incorporate all that good stuff into one awesome day of numbers!!! Way to go!Melhttps://www.blogger.com/profile/12248072913771890211noreply@blogger.comtag:blogger.com,1999:blog-8484842560584031366.post-65823384927989890262012-01-30T15:24:54.064-05:002012-01-30T15:24:54.064-05:00I am the Grandmother of a 4 yr. old little boy bor...I am the Grandmother of a 4 yr. old little boy born with CP. I know how important it is for you Mommies to get your feelings, good & bad, out and know that someone out there reads them. I found your blog via my daughter's blog, Jump In For James. I may not always comment but just know I check in and read. Someone is listening and someone cares. You are special Mommies given a High Gmama Janehttps://www.blogger.com/profile/02866486725742104875noreply@blogger.comtag:blogger.com,1999:blog-8484842560584031366.post-70949102976897348812012-01-27T22:10:24.749-05:002012-01-27T22:10:24.749-05:00Daniel looks great! Pat yourself on the back for ...Daniel looks great! Pat yourself on the back for all of your hard work. You deserve it!Melhttps://www.blogger.com/profile/17143392629785332250noreply@blogger.comtag:blogger.com,1999:blog-8484842560584031366.post-42511474312796957802012-01-24T20:29:43.642-05:002012-01-24T20:29:43.642-05:00hi mel! so great to see all these pics of daniel....hi mel! so great to see all these pics of daniel. looks like he is doing really well. some day i need to give you a call and we can discuss school. really curious about your experience and CE and such. keep on keepin' on!Erinhttps://www.blogger.com/profile/12918745460323578319noreply@blogger.comtag:blogger.com,1999:blog-8484842560584031366.post-32093791465586515222012-01-23T08:23:33.557-05:002012-01-23T08:23:33.557-05:00Love how you show his different positions and acti...Love how you show his different positions and activities. <br /><br />Soon enough, if not already, you will be having similar feelings about moving your growing boy around. <br /><br />I question the need/benefit of sitting on the floor by the time a child is 5 or 6 years. The cost/benefit ratio is low or the work to put her there and get her out of there is far greater than the benefit from Barbarahttp://www.therextras.comnoreply@blogger.comtag:blogger.com,1999:blog-8484842560584031366.post-72876111075954452902012-01-05T21:34:02.979-05:002012-01-05T21:34:02.979-05:00Daniel brings a smile to my face!
sorry for being...Daniel brings a smile to my face!<br /><br />sorry for being MIA! happy new year! finally catching up to the blogging world. crazy holidays.Kaylahttps://www.blogger.com/profile/00760513237256488573noreply@blogger.comtag:blogger.com,1999:blog-8484842560584031366.post-17636306397559670092012-01-03T05:57:18.847-05:002012-01-03T05:57:18.847-05:00FB drains my blogging energy too!
But I LOOOOOVE...FB drains my blogging energy too! <br /><br />But I LOOOOOVE reading your posts! I LOOOOOOVE seeing his sweet face! And my word...are you rockin' the homeschool or what?! Between you, Andi S and Chugani...maybe I should think about moving west! I think you could handle homeschooling two?! <br /><br />xo <br /><br />...danielleDanielle https://www.blogger.com/profile/04484341169494632974noreply@blogger.com