tag:blogger.com,1999:blog-8484842560584031366.post6007653470631505376..comments2023-06-21T19:44:41.040-04:00Comments on better than normal: STILL SEIZINGMelaniehttp://www.blogger.com/profile/14976460220405392152noreply@blogger.comBlogger3125tag:blogger.com,1999:blog-8484842560584031366.post-5368247351065794112007-08-15T06:59:00.000-04:002007-08-15T06:59:00.000-04:00Seizures certainly suck big time! MY little one ha...Seizures certainly suck big time! MY little one has CP, Hydrocephalus and since last year seizures. Yes they suck. Don't know when they are coming, can't prevent them the helpless of it all. They are scary and the recovery time is just as bad, you are on hold and alert 24/7. I can't help with words of wisdom just know others are out there too! Some in better situations some in worse situations Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8484842560584031366.post-2637840844734395972007-08-14T15:38:00.000-04:002007-08-14T15:38:00.000-04:00god, i know what that's like. my son has been diag...god, i know what that's like. my son has been diagnosed with TSC since he was 3 months old. <BR/><BR/>about the seizures. yes, he was having infantile spasms. and they didn't even stop while we were giving him that medicine that we had to get from canada or mexico (because it's not approved by the FDA).<BR/><BR/>so when he was three he got a VNS implant. whadaya know...that little sucker worked Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8484842560584031366.post-78258392726074135172007-08-12T12:22:00.000-04:002007-08-12T12:22:00.000-04:00Hang in there. Daniel is so sweet. Try to get a li...Hang in there. Daniel is so sweet. Try to get a litlle "alone time" even if it is just a few minutes for a walk. Ask your husband to watch Daniel and go out for a little bit. <BR/><BR/>I'll keep all of you in my prayers. You are amazing!<BR/>Susan,<BR/>mom to Paul, 9 years old and Anna, almost 3 years old, spastic diplegia cpAnonymousnoreply@blogger.com